Project Description

Objectives

1)     Describing the access to formal dementia care services across the European countries.

  • Defining a terminology for the description of the legal, socio-economic, and cultural prerequisites and conditions of formal public or private home care, community and long-term medical, nursing, and social care available to patients with dementia in the period of the disease in which transition from informal care to formal care takes place.
  • Analysing, comparing and summarising data and information from across Europe.

2)     Exploring how access to formal care is experienced by patients, their informal carers and next of kin, and health and nursing care professionals.

3)     Determining the barriers and facilitators of timely access to formal dementia care from the perspective of policy and political decision makers.

Description

This work package involves cross-national comparisons of access to formal care. At the macro level, it will describe and analyse how access to formal health and nursing care and social care systems for people with dementia, their informal caregivers and next of kin is organised across the eight partner countries. The overview will not include services that specifically aim to establish a diagnosis of dementia. It will focus instead on the different health care systems, taking the infrastructure and funding, legal, socio-economic and cultural aspects into account. At an individual level, it will explore personal experiences of accessing formal care in the transition period from informal to formal care (beyond the diagnostic phase but before there is a need for institutionalisation), as well as barriers and facilitators.

WP Leader: Prof. Gabriele Meyer, Martin-Luther University, Halle-Wittenberg, Germany. Read more about the WP2 team here.