The Actifcare team met for our last plenary meeting in Brescia, Italy at the end of last month and it was a good opportunity to review the key findings of the project. The highlights of the meeting were:

Thursday 30th March

  • The WP1 team presented a reminder of our journey through the three years of the project. A lot of work has been achieved and we are nearing the point where we can present our key findings and recommendations to a wider audience.
  • We discussed results from the cross country analyses of the data from the 1-year cohort study in each of the following areas:
    • Unequal (inequitable) access to care – following the Anderson Model of health services utilisation
    • Factors associated with access to care
    • Themes emerging from the qualitative analysis of final interviews with study participants
    • Association between use/non-use of services and met/unmet need
    • Costs and consequences of formal care in situations of unmet needs
    • Cost and quality of life drivers in relation to levels of unmet needs
    • Validation of two relatively new measures in this population: ICECAP-O and Carer-Qol
  • Researchers gave a short pitch on any other analyses they were involved with both in relation to cross country data and also at a national level in each of their respective countries
  • The WP5 team then presented an overview of the Delphi Consensus Process that has just completed. The aim of this process was to achieve consensus across a range of potential recommendations to help identify best practice with regard to accessing dementia care.
  • The WP6 reviewed a number of different options with the team for disseminating our results both at a national and at an international level. More news on these over the coming months.
  • Finally, the group discussed where next …. how to build on the results of the Actifcare project and potential future collaborations.

Friday 31st March

The Actifcare team also met with the members of the advisory board to review results and discuss how best to present key findings and recommendations. The highlights of the meeting were:

  • The WP2 team opened the day with a summary of the results from this work package, which is now complete.
  • The WP3, WP4 and WP5 teams then presented an overview of their findings to date. These presentations were essentially a summary of the more detailed review of results from the previous day. The advisory board had the opportunity to question the results and findings and they gave ideas of how to present these findings and in some cases, how to extend and enhance the analysis itself.
  • The WP5 team then walked through an initial list of best practice recommendations that have resulted from the Delphi process. Each was discussed with the group and the advisory board. Discussions ranged from the grouping and the prioritisation of recommendations to the strength of the language used when presenting the recommendations.
  • The WP6 team reviewed the dissemination activities across the project. A fourth and final edition of the Newsletter can be expected in Summer 2017. Results will be discussed with key policy and decision makers in each country and a summary of these findings will be produced and included in the final Actifcare report. Presentations will be made at national and international conferences and lay summaries of the results will be produced for dissemination to as wide as audience as possible.

Many thanks to the advisory board for their engagement and support throughout the project and in particular during the review on Friday.

Many thanks also to the Italian team for their superb hospitality and the wonderful weather they were able to arrange for us!